SMA Care Registry

System Overview

SMA Type Distribution

Latest Clinical Status

Support Needs

New Visit

Enter an existing Patient ID to load patient information, then add visit details.

Patient ID or Name

Patient Information

Basic Information

Full Name

Phone Number

Age

Weight (kg)

Date of Birth

Date of Death (if any)

Diagnosis

Diagnosis Date

SMA Type

SMN Copies

Treatment

Company

Previous Company / Treatment

Current Company / Treatment

Treatment Start Date

Treatment Interruption

Status & Attachments

Status

Notes

Patient Images Images are saved with the patient information

Visit Data

Visit Details

Visit Date

Doctor

Visit Review Status

Physical Therapy Assessment

Mobility Level

Score

HFMSE

RULM

CHOP

Physical Therapy Notes

Upload Visit Images

Neurology Review

Status

Ventilation Status

Feeding Type

Medication

Adverse Effects

Neurology Notes

Neurology Treatment Plan

Patients

History

Patient Profile

Pending Neurology Review

Reports

Import from Google Sheet

Upload CSV exported from Google Sheets

Bulk Patient Images

Choose the main folder that contains Patient ID folders Nothing will be uploaded until the preview appears and you press Confirm Upload.

Clear All Patient Images

Admin only. This permanently deletes all patient image files from Firebase Storage and removes image links from patient and visit records.

Dashboard Details

Doctor Login