SMA SMA Care Registry Patient Information Center
Authorized medical staff
إعلانات عامة للمرضى وعائلاتهم

تبليغات المرضى

آخر التحديثات والتعليمات العامة المنشورة من الفريق الطبي في سجل رعاية مرضى ضمور العضلات الشوكي.

خصوصيتكم مهمة هذه الصفحة مخصصة للتبليغات العامة ولا تعرض بيانات المرضى الشخصية.

أحدث التبليغات

تظهر التبليغات المهمة أولاً.

Sign in to Doctor Portal

SMA SMA Care Registry

Today Needs Attention

Quick Actions

Registry Snapshot

Recent Visits

Optional Overview Charts

SMA Type Distribution

Latest Clinical Status

Support Needs

Visit Workflow

New Visit

Existing patient clinical visit

Patient not selected

Patient Information

Basic Information
Diagnosis
Status & Attachments
Images are saved with the patient information

Visit Data

Clinical visit record

Visit Summary

Essential visit information

Core visit fields
Physical Therapy AssessmentMobility, functional scores, and physiotherapy notesOptional
Musculoskeletal / Skeletal StatusScoliosis, contractures, and skeletal findingsOptional
Treatment & Clinical EventsMedication, manufacturer, dose, and important eventsOptional
Neurology AssessmentNeurologist review, clinical examination, and treatment planNot recorded
Clinical FindingsStructured neurological, bulbar, and respiratory examination Not recorded
Functional & Motor Status Current function observed during this visit
Neurological Examination Record only findings assessed during this visit
Bulbar & Respiratory Findings Swallowing, airway clearance, and breathing pattern
Visit ImagesAttach clinical images only when requiredOptional
Patients
History
Patient Profile
Pending Neurology Review

Build Report

Prepare practical registry reports for export, printing, ministry review, or company reporting.

Report Type
Common Filters

Import from Google Sheet

Bulk Patient Images

Nothing will be uploaded until the preview appears and you press Confirm Upload.

Clear All Patient Images

Admin only. This permanently deletes all patient image files from Firebase Storage and removes image links from patient and visit records.

Research

Simple registry summary for the selected patient group. Results are descriptive and do not prove treatment effect or causation.

Cohort Builder
Use these filters for the main clinical cohort.
Advanced Filters
Use these when preparing detailed registry review or research exports.
Dashboard Details

تبليغات المرضى

اكتب تبليغ عام فقط. لا تكتب أسماء مرضى، أرقام ملفات، صور، أو أي معلومات شخصية.

Published Notices

Patient image

Capture Patient Profile Photos